Thursday, May 21, 2009

Post cancer CT scans

For anyone who is going through this, you know what I mean, my husband had a GIST tumor removed 2 years ago, totally removed, gone, etc, first year he went every 6 months for a scan, now we are doing it every year.
Today was the day, for the last several weeks at least, you start getting anxious, every twitch and pain makes you wonder, yet you really don't talk about it, you don't want to admit that you are scared still.
Today we got up before daylight to drive the 2 hours ( different time zone ) to wait in one waiting area, then get moved to another waiting area, finally drink the contrast, wait some more, then get the scan.
Now you have to waste an hour before the appointment with the doctor.
In the doctors waiting room, a woman walks up and wants to know if you will sign papers to be included in a study since GIST tumor patients are a little rare, now you really ramp up the anxiety level, wonder if she knows something we don't? Does she want to get the signature before we get the bad news?
Finally DR walks into the room, makes small talk , asks how you are doing, you really want to grab him by the neck and scream YES OR NO????
Finally he goes and reads the scan, comes back and says, everything is perfect!!!!!!!!!!!!! YEAHHHHHHHHHHH BREATH!!!!!!!!!!!
We know that in 8 or 9 months we will start building up the anxiety level once again,, but for today, we are happy, we are thankful, we are blessed.

My husbands tumor was larger than normal, sort of small watermelon size, which is one of the aspects they use to determine your risk of it coming back, large is bad,, on the other hand, the other measurement of risk is how " cancerous " it was, in other words, how many cells had divided, his was low, which is good, so will never really be sure he is low risk because of size.
Reducing the stress leading up to your time for another scan?
Keep busy, find something funny, jokes, stories , anything. Go out to eat, go to a movie, don't sit around and think about it!!!
Day of the scan, take a book, magazine , something to do in the waiting areas, something light, funny and entertaining!!!
Above all, have faith. Good Luck.

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